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WARNING – BRUTAL TRUTH. Top 6 Lies a surgeon will tell patients in order to obtain consent for Surgery
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My Success Story
I never believed I’d be on here writing one of these, but I managed to get my symptoms nearly completely under control. I used to spend hours on here desperate to find a solution that was just a little bit better than what I dealt with.
I have bile reflux from having my gallbladder removed. Starting before the surgery, I had violent diarrhea, nausea, terrible headaches any time I had a flare, terrible sinus issues, heartburn, GERD, and literally had the chicken pox three times, then I had shingles. The headaches were the worst, and nothing got rid of them. Most days I was too afraid to leave the house, and I wouldn’t go anywhere where I didn’t know what the bathroom situation would be. The surgery helped some, but I continued to have flares, with days where it all returned. They got worse again, more regular. I tried everything – paleo, low fat, low carb, barely eating, probiotics, all sorts of supplements, calcium, SCD, and what helped the most was low-FODMAPs, but nothing really helped me back to normal.
About four months ago, my gastroenterologist put me on Welchol after I had an endoscopy and it showed large amounts of bile in my stomach. Welchol helped some of the symptoms, but I still had quite a few. I was still doing low-FODMAPs, and decided to try out probiotics again. Within a week, my symptoms subsided to a manageable level. After three weeks, I had normal bowel movements, no headaches, and felt like a totally different person.
What I believe happened was that I had SIBO with leaky gut, but the bile reflux kept probiotics from working in the past. It took Welchol to clean up the bile and ease the leaky gut before the probiotics and the low-FODMAPs diet worked. I believe low-FODMAPs gave the SIBO less to eat, and that’s why it helped more than anything else, but the bile reflux was keeping my stomach inflamed and unable to repair itself. The probiotic I took was Raw Probiotics Vaginal Care. I took two a day for three weeks, then went down to one a day. It was crazy expensive, but I’m downgrading to a cheaper one today, and going to see how that goes. All of them together fixed the problem.
I added gluten back two weeks ago, and feel fine. I can eat fruit again, even higher FODMAPs fruit (though I’m still afraid to try fruit like apples and pears). I’m keeping a low-fat diet to help the Welchol keep the bile reflux in check, but I’m eating normally and feeling normal.
If there’s even one person that reads this and it helps them, it’s worth it to share my tale. I hope everyone finds something that makes their lives easier.
Dear friends, I’m now 16 months post op and my stomach problems have slowly gotten worse to the point where I cannot eat or drink anything without severe nausea and pain. I even feel sick with an empty stomach. Had a liver biopsy which showed a resolved liver injury but nothing critical even though that’s where much of my pain is. My bilirubin and liver enzymes are both elevated but they say not high enough to be serious.
I’m supposed to see a pancreatic doctor in a month but I am wasting away fast. The liver doctor put me on Creon which is prescription pancreatic enzymes but they just make my stomach feel like its pushing up into my lungs and causes my heart to feel strange and short of breath.
I feel like I have been punched in the liver and stomach. Fearing for my life and I fear hospitals now because I have been there too many times with no relief. I usually leave a hospital in worse shape than when I went in. Does anybody else have these type of symptoms? Also, yellow stool with undigested fats. Not goodLK
December 13, 2015
Hi I’m new to this group so thanks for adding me. I had my gallbladder removed 6 years ago and it has been difficult ever since. I suffer from alot of things and haven’t been diagnosed with anything yet but I am trying to change that. First I have an appointment to see a dietitian, so we can discuss any allergies or deficiencies that might be present.
But in saying that, I have a feeling that i could have BAM ( bile acid malabsorption). As my bowel movements are painful and frequent. I have constant gut pain, sore joints, bloating, diarrhea, gas, headaches, swelling, arthritis in my wrist, back pain and the list goes on.
I just wanted to ask if there is anyone experiencing this and if so what has been prescribed? How did your doctor test for it? My doctor hasn’t done anything but a blood test and told me that I’m deficient in Omega 3 fatty acids. So that might be an indication too?
Honestly, I don’t know, I’m not a doctor but I need to find answers. How do I make my doctor take me seriously? And do more tests?
Also who has Chrons? And or IBD And is there a link between this?
I just need some answers please.
TIA.Update:
I just compiled a document to give to my doctor so he can take me more seriously. He only treats one thing at a time and it’s really starting to piss me off. So hopefully this will make him realize that I’m not just making shit up and i need to be referred to a gastroenterologist! Asap!
When to see a doctorSee your doctor if you experience a persistent change in your bowel habits or if you have any of the signs and symptoms of inflammatory bowel disease. Although inflammatory bowel disease usually isn’t fatal, it’s a serious disease that, in some cases, may cause life-threatening complications.
Signs and symptoms that are common to both Crohn’s disease and ulcerative colitis include:
Diarrhea.
Diarrhea is a common problem for people with IBD.Fever and fatigue. With low-grade fever.
You may also feel tired or have low energy.
Abdominal pain and cramping.
Inflammation and ulceration can affect the normal movement of contents through your digestive tract and may lead to pain and cramping.
You may also experience nausea and vomiting.
Reduced appetite.
Abdominal pain and cramping, as well as inflammation, can affect your appetite.
Arthritis and joint pain and weak bones.
Painful eyes and sensitive to sunlight.
Pain because of Gallstones removal.
Bile Acid Malabsorption
Red bumps on skin and in mouth
Breathing difficulty and lung problems Shortness of breath
Headaches, body aches, twitches, stabbing pain all over body.
Taking Bi polar meds Lamotrigine 100mg and recently ceased Citalopram 40mg.
Confusion, memory loss, weight gain due to taking Seroquel XR 50mg
Taking Pantoprazole 40mg for acid reflux but doesn’t help.
Also taking Neulactil 5mg. Does nothing.
Finally taking Propranolol 50mg daily as needed for anxiety.
I have gained weight due to taking Seroquel. I have ALL the symptoms mentioned above. I am dealing with this all the time at any given time. This is hurting me physically and emotionally and if effecting my quality of life. Please take me seriously. I need help.
Hi everyone. I had my gallbladder removed in September 2011, and have been suffering ever since. I’ve been on anti-nausea and acid reducing medcation ever since, but was only officially diagnosed with pcs last year. I’ve been told it is probably something i will have to live with for the rest of my life, as my symptoms are getting worse, not better frown emoticon I have 5 children, the youngest has just turned one, and some days i find it difficult to function and look after myself, let alone them frown emoticon I wish i’d never had the op, a bout of pain every few weeks would have been entirely preferable to feeling sick and not being able to get off the toilet for the rest of my life, not to mention still being in pain!!!
Sorry for the whinge, its nice to find somewhere with people who understand. Everyone around me doesn’t get it, as i seem ok on the outside and i don’t like to moan about it constantly, so its like they forget that i’m living with this all the timekezza4878: I still have not found a cure for my nerve damage. there are sub-costal nerves that lie along the rib cage near the top incision site so do not believe what the surgeon has told you. My nerve has either been cut or damage. they do not know. they will not operate in fear it will get worse. since i last posted i have seen a pain specialist who injected this top port site area with a steroid. this has given a lot of relief but i can not perform any duties still or lift any heavy items as it exaberates the pain tremedously. I still have been unable to return to work. it has now been 5 months from surgery with no signs of improvement. Take away the inj and pain killers the pain is just as severe as the day after surgery. I have since been told a nerve pulse stimulator may help but i would rather less invasive surgery if possible. if any one has found a cure for this nerve damage from the top port site please please please post a comment here asap.
Wenando: After I had my gallbladder out, I got gastroparesis ( delayed stomach emptying) from damage to the vagus nerve during surgery. Took me years and many tests to find out what was wrong with me. Of course the
surgeon didn’t want to know about my symptoms and was so unfriendly that I never returned with my complaints which is what he wanted. This is not what you have but I’m saying it’s possible to get damaged nerves during laproscopic surgery.I had gallbladder surgery when all my problems started when I ate it would push up in my stomach I get palpitations and feel like all the circulation my head cut off and now for some reason I can’t hear out of my ear and I’ve been told that this could be vagus nerve damage and also have it pitch nerve in my neck on the left side and when I left when I lift my arm I get palpitation
Read more at Buzzle: http://www.buzzle.com/articles/vagus-nerve-damage.htmlwenando
After I had my gallbladder out, I got gastroparesis ( delayed stomach emptying) from damage to the vagus nerve during surgery. Took me years and many tests to find out what was wrong with me. Of course the
surgeon didn’t want to know about my symptoms and was so unfriendly that I never returned with my complaints which is what he wanted. This is not what you have but I’m saying it’s possible to get damaged nerves during laproscopic surgery.I agree, the anecdotal evidence is highly suspicious that gallbladder surgery is a cause of GP in many people. The disconnect that I see is the belief that vagus nerve damage is the only cause of GP. My research and others here shows it is not, it is but one of many possible causes. Perhaps some damage to the enteric nervous system, which is embedded in the lining of the gastrointestinal system, happens during some surgeries. “The enteric nervous system (ENS) or Intrinsic nervous system is a subdivision of the autonomic nervous system (ANS) that directly controls the gastrointestinal system in vertebrates.” “Vertebrate studies show that when the vagus nerve is severed, the enteric nervous system continues to function.” Wikipedia.
Both my neice and myself had the same problem.We had our gallbladders out and ended up with gastroparesis,i don’t care what the doctors are saying there has to be a connection.
I also got sick with GP after having my gallbladder removed. I had many gall stones and had it removed lapriscopically in an emergency surgery (it almost burst) and after the next few years I gradually got sicker and sicker until I was diagnosed with GP. None of my doctors have confirmed that it was because of the surgery but I know it had something to do with it. Otherwise, why am I sick?
And also annie, ask your husband surgeon this. Why do soooo many people that have that surgery, end up with GP.? He certantly cannot dispute the 1000’s of people that get GP right after this surgery. And, if its not the Vagus that was injured, then what is it? What causes GP especially right after this type of surgery?? It just seems.very.strange that GP happens after a surgery like a GB removal. According to my GI/ Motilty Dr., I should have had an open surgery because of the severe Adhesions from a prior stomach surgery that were found, plus I WAS considered obese. 2 huge factors dictating that the surgeon should have converted from LAP to an open.. Like I.had said previosly. These.docs have zero accountability for their carelessness, anddont give a sh#t about us as patients. Something is DRASTICALLY WRONG HERE, and we are the ones paying for it.
Gastroparesis after gall bladder surgery
Was told by a highly regarded Motility expert which stated that it is very likely that my GP was a result of my GB surgery. there were a ton of adhesions that he had to manuver around. My GI doc, and Lawyer are convinced that it was the cause.. Like someone else said on this thread. The vagus gets bangged around and such during surgeey. Plus it dont take much. Also, myself, and alot of others on here are in the same exact prediciment that you are. Docs stick up for other docs. Of course there gonna tell you it aint possible. Well, it is possible, and I’m living proof of that. My lawyer has just found out from many so-called “experts” that a vagul injury can be a risk of a lap GB. And you are right. It doesnt go near the GB. So, then hore is it a DAMN risk if your not even in tgat area?? I an extremly frustrated right now with Dr s, Surgeons, Lawyers, hell, all of em!! Buch of corrupt, greedy,people that have ZERO ACCOUNTABILITY!! Dont let then tell you its not possible..Gastroparesis after gall bladder surgery
Was told by a highly regarded Motility expert which stated that it is very likely that my GP was a result of my GB surgery. there were a ton of adhesions that he had to manuver around. My GI doc, and Lawyer are convinced that it was the cause.. Like someone else said on this thread. The vagus gets bangged around and such during surgeey. Plus it dont take much. Also, myself, and alot of others on here are in the same exact prediciment that you are. Docs stick up for other docs. Of course there gonna tell you it aint possible. Well, it is possible, and I’m living proof of that. My lawyer has just found out from many so-called “experts” that a vagul injury can be a risk of a lap GB. And you are right. It doesnt go near the GB. So, then hore is it a DAMN risk if your not even in tgat area?? I an extremly frustrated right now with Dr s, Surgeons, Lawyers, hell, all of em!! Buch of corrupt, greedy,people that have ZERO ACCOUNTABILITY!! Dont let then tell you its not possible..Like many of you, I have struggled with health problems for the past few years – but have struggled for the longest in just getting a diagnosis. During 2005, I began to feel terrible, and had unrelenting intense epigastric pain after eating. My internist ran some tests, and discovered that my gallbladder was working at 7%. Since it was not really functioning, it was recommended that I have it removed. I did, and felt better for a while. The symptoms returned about a month later, but were a lot worse. I was referred to another specialist 2 hours away, and was diagnosed with Sphincter of Oddi dysfunction and had a biliary sphincterotomy. However, I did not have any significant improvement after the surgery. My doctor at the tertiary facility pretty much gave up on me and finally referred me back to my internist and local GI doctor.
At that time, I was so sick that I could only eat soup and baby food – and even that was painful to eat. No one could figure out what was wrong. In 2007, a local GI doctor referred me to a nationally renowned facility, and I received a call from the facility stating that a doctor had reviewed my case and thought there was nothing they could do for me! I eventually got an appointment with another facility 14 hours away. I underwent a few tests, and was diagnosed with moderate idiopathic gastroparesis. The GI fellow that broke the news to me prescribed Reglan, told me to eat a balanced diet, read about the disease on the internet, and figure out what to eat by surfing the web. He then left the room, and my husband and I got into the car and drove 14 hours back home. Still frustrated, because I thought something else may be wrong, I drove back 14 hours for a follow-up appointment. I was told by the attending physician there that maybe I pulled a muscle, maybe I was just depressed, or just maybe I wanted attention. That made me angry. I thought at one point that maybe I was losing my mind, but I had physical symptoms of pain, vomiting, and nausea – and there is no way I could be making up all of that!
I finally did my own research and found a list of the top motility clinics in the US. I decided that I wanted to get to the bottom of this… I was tired of the run around… I wanted some real answers from doctors that deal with these problems daily. I finally made a phone call to one of the most comprehensive motility clinics in the US and got an appointment rather quickly. My husband and I traveled once again, hopeful for answers. It was determined that I have severe reflux (even though I don’t have heartburn or an erosive esophagus) as well as gastroparesis. All of the doctors that I had seen before did not really go into detail about gastroparesis – only that I should not be hurting like I do. They blew off my symptoms and thought I should feel normal. Their attitude towards this disease made me feel like I should be normal and eat whatever I want, etc… This has caused me to really “be in denial” that anything significant is wrong with me, which actually made my symptoms worse. This “new” doctor actually told me that my problem was pretty moderate – and there was a problem! He did not sweep my problems under the rug or try to downplay them. We are actively trying to manage this situation. He actually gave me some dietary advice to follow. I have had consultations with a dietician that knows about gastroparesis and how to manage it. At least now I feel like I have a toolbox of solutions to my problem. It took me 5 years to get there, but I feel like I have finally made it!
For those of you out there who have been rejected by the “best” and who have lost all hope for help… please do not give up. I am confident there are answers out there for you. It may take some time and effort to find all the answers, but you will find them. It may take a long time to find a doctor that understands functional GI disorders, but he or she is out there, and has dedicated his or her life to help you. My prayer for you is to not become discouraged in your journey towards seeking help, and that you may find wellness and healing.
